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I'm lucky aren't I…

My inspirational 50+ Down Syndrome sister – living positively with alzheimers

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Tag: Down syndrome Alzheimers

Documentation to Dementia Diagnosis

The meeting was brief and just simply “Yes Wendy, you have alzheimers like your mum did”. With heightened emotions it feels like a sledge hammer hitting you even though you were fully prepared and expecting it.

alzheimers, Down syndrome Alzheimers, Downs-dementia

The journey to know “What is going on”

I write this article because as time has gone on through researching and listening to parents and siblings in my situation; we all sound the same. We are confused by what we are living with.

Down syndrome Alzheimers, down-syndrome, Downs-dementia

10 days of COVID Lockdown in hospital

Wendy was having more days with of episodes of “low blood pressure” sometimes I would test her at these times with our home blood pressure reader and would find her blood to be about the same during these episodes as in just normal rest times.

Down syndrome Alzheimers, Down syndrome Regression, frontotemporal dementia, hospital, vertigo
Wendy and Great Neice

What is going on – too many changes.

The overriding thoughts I have been having for almost a year now, has been focused on trying to work out what has been going on with, Wendy in relation to her behavior, emotions, and cognitive abilities.

Down syndrome Alzheimers, Down syndrome Regression, Downs-dementia

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